Smile please: train that leaves behind a trail of happiness

CHENNAI, SEPTEMBER 30:  

Before 2008, five-year-old Pinki Sonkar was not allowed to attend school. Nor was she able to play with children her own age. She led a life of quiet desperation, hoping against hope that someday, someone would come along and fix her face.

Her village, Rampur Dahaba, in Mirzapur district, near Varanasi in UP is one of the poorest parts of India. And to be born here with a severe cleft lip, like Pinki was, meant that not only was one ostracised for life, but that one was also unable to afford surgery for a perfectly curable affliction.

But soon, something remarkable happened: Pinki’s parents met a social worker who was rounding up patients for a hospital that provides free cleft lip and palate surgery. This is the GS Memorial Hospital in Varanasi, where, in partnership with the international children's charity Smile Train, plastic surgeon Dr Subodh Kumar Singh performed corrective surgery on Pinki.

Now, Pinki smiles like everyone else. But Pinki’s tale, captured in the Academy-award winning documentary called Smile Pinki (2009), in which she starred, isn’t the only such story.

Every year, in the developing world alone, 1.70 lakh children are born with cleft lip and/or palate. And the incidence of cleft lip is the same for the developing and the developed world. No one knows why it happens and such facial and oral malformations don’t target the poor alone. “The difference is that it gets corrected at birth in the West because doctors are aware of the condition and how simple it is to correct it. Sometimes the surgery takes a mere 45 minutes and, through Smile Train, it costs as little as $250,” said Satish Kalra, Chief Programme Officer of Smile Train.

Kalra was speaking on the sidelines of a two-day knowledge-sharing session that took place in Chennai recently. “Left untreated, apart from the shame, in developing countries, millions of children have difficulty eating, speaking and even breathing owing to the condition,” he added.

Smile Train, a US-based NGO, recognises this need and provides training and funding in more than 85 developing countries to provide 100-per cent free cleft repair and related surgeries.

Corporate support

Kalra is also looking to build corporate support from India Inc, as donors, to assist in Smile Train’s activities. It’s rather ironic though that for surgeries that take place in India, a large part of the funding still comes from abroad, despite the CSR Act.

While there are many other worthy causes such as education, and sanitation, which could use the funding, the impact, when it comes to donating to Smile Train, is more immediate because the condition is easily rectifiable, he added.

A unique facet about Smile Train’s model is that it doesn’t differentiate between the rich and poor. “We do not determine if the patient is of BPL status, as long as they are willing to undergo the same treatment as others,” he added.

So, if, say, the child of a millionaire is brought in to a Smile Train partner hospital: he/she can either undergo the surgery through Smile Train’s scheme without paying anything or can pay the hospital’s rate for a surgery. The patient can also get the surgery done under Smile Train’s programme and pay a donation to Smile Train instead.

The goal is to provide every child born with a cleft lip anywhere in the world, irrespective of class, the opportunity to live a full and productive life, he added.

(This article was published on September 30, 2015)

The above is from Business Line